Action Cerebral Palsy is a national consortium of specialist charities working with children with cerebral palsies and their families.
Visit WebsiteTiny Happy People helps you to develop your child’s communication skills with simple activities and play ideas.
Visit WebsiteAn interactive pregnancy and parenting app created to support parents, co-parents and caregivers, and to back up frontline practitioners’ work and communication. Baby Buddy provides trusted, evidence-based information and self-care tools, based on the latest research and is NHS-approved.
Visit WebsiteBliss offers a wide range of free services for the families of premature and sick babies including a new video call support service.
Visit WebsiteThe Brazelton Centre UK is a national charity dedicated to supporting healthy parent-baby relationships though promoting an understanding of newborn babies’ communication.
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Visit WebsiteBAPM improves standards of perinatal care by supporting all those involved in perinatal care to optimise their skills and knowledge, promote high quality, safe and innovative practice, encourage research, and speak out for the needs of babies and their families. They are a membership organisation representing over 1600 professionals that work in perinatal care.
Visit WebsiteThe British Association for Neonatal Neurodevelopmental Follow-up (BANNFU) is a special interest group of BAPM. BANNFU is a multidisciplinary group which exists to improve the long term outcomes of all babies that have had neonatal care by disseminating best practice and improving care.
Visit WebsiteWe are a national centre of excellence for families in Wales with children who have Cerebral Palsy.
Visit WebsiteCircle of Security is an attachment based programme to enhance the relationship between caregivers and their children.
Visit WebsiteConnected Lives is all about helping key relationships thrive. Using evidence-based programmes our trained facilitators provide a safe space for people to think about these connections through groups, courses, trainings and one off evening events.
Visit WebsiteResearch at the Institute of Developmental Neurology addresses mechanisms underlying typical and deviant neurological development from fetal life till early adulthood.
Visit WebsiteThe MRC funded EPICure studies are longitudinal cohort studies of babies born at extremely low gestational ages across the country in 1995 and in 2006. To date, follow up for the cohort has been through to 19 years and to 3 years for the 2006 cohort.
Visit WebsiteThe European Academy of Childhood Disability (EACD) is founded in 1989, and is an international not-for-profit association for anyone with a clinical and/or scientific interest in childhood-onset disabilities in Europe.
Visit WebsiteFINE is the only programme that gives neonatal professionals of all disciplines opportunities to develop knowledge and skills in steps that can be paced to their career needs, whether that means orientation for beginners, developing competent practice or leadership.
Visit WebsiteSupporting families through premature and traumatic births, the neonatal unit and beyond.
Visit WebsiteThis guideline covers the developmental follow-up of babies, children and young people under 18 years who were born preterm (before 37+0 weeks of pregnancy). It explains the risk of different developmental problems and disorders, and specifies what extra assessments and support children born preterm might need during their growth and development.
Visit WebsitePACE is a specialist charity that is committed to ensuring that children with neurodisabilities have the opportunity to reach their fullest potential in life and can take their place in the world.
Visit WebsiteThe Parent Infant Foundation support the growth and quality of specialised parent-infant relationship teams across the UK.
Visit WebsiteFree resources to help support preterm born children at school
Visit WebsiteStoke Speaks Out is an initiative which was set up in 2004 to support children’s speech and language development in Stoke on Trent. It involves everyone who links with children in some way including parents, practitioners and the wider community.
Visit WebsiteWe came together with the common purpose of improving the level of psychosocial support provided to NICU parents – as well as improving training and support for those who provide care in NICUs.
Visit WebsiteTEDEI (Training in Early Detection for Early Intervention) is an e-learning course for healthcare professionals working with infants. The course offers training on how to detect emerging movement difficulties in infants up to six months old.
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We are a group of individuals and organisations committed to working together and sharing good practice and resources. We strive to improve the healthcare of children with medical complexity and their families and provide support and educational materials for the professionals looking after them.
Visit WebsiteThe Smallest Things exists to provide understanding of the unique needs of families of premature babies.
Going home from the hospital is far from the end of the journey through neonatal care. Many babies have longer-term needs and lots of parents struggle mentally, practically and financially following the trauma of NICU. We’re here for them.
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